Affiliates:

	International Rett Syndrome Foundation (IRSF) rettsyndrome.org
Center of Excellence for Rett syndrome 2021 to present

The Rett Syndrome Research Trust
reverserett.org

The International Foundation for CDKL5 Research
www.cdkl5.com/

The Pitt Hopkins Research Foundation
pitthopkins.org/

Atlanta Neurogenetic Institute

Other recommended resources:

www.ClinicalTrials.gov
rarediseases.org
www.CISCRP.org
www.patientslikeme.com